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Date: Thursday, July 26, 2012 - 10:00 am
Duration: 1 Hour
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When: The series includes six free webinars on the last Thursday of every month from 1-2 p.m. (ET). The next webinar is on July 26. Attendees do not need to pre-register. Find details here about each of the webinars and about logging in to register the day of the event. Previous Webinars in the Series: Listen to and watch the April 26 Introduction Webinar, the May 31 Ownership and Control Webinar and the June 28 Protection of Privacy Webinar. What: States that store and provide residual dried blood spots (DBS) for secondary uses, or are considering storage and secondary uses, may face an array of legal issues. This webinar series is intended to cover these legal issues – and related ethical and policy issues – concerning secondary uses of DBS and associated data. Next Webinar: July's webinar is on protection of human research subjects. Presenters include Barry H Thompson, M.D., M.S., F.A.A.P., F.A.C.M.G., (Moderator), Medical Director, American College of Medical Genetics and Genomics; Harry McGee, M.P.H., IRB chair, Michigan Dept of Community Health; and Rachel Nosowsky, J.D., principal counsel, University of California. Find information here. Who: This webinar series is intended for public health attorneys, newborn screening programs and laboratories, institutional review boards, HIPAA privacy boards, privacy officers, researchers and others who have interest in legal, ethical and policy issues related to secondary uses of residual DBS. These webinars are jointly presented by the Newborn Screening Translational Network (NBSTRN), the Network for Public Health Law, the National Newborn Screening and Genetics Resource Center (NNSGRC) and the Association for Public Health Laboratories (APHL). |
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